My Health Story (MHS) has seen many growth spurts in its start-up time. Today we release yet another! MHS is thrilled to introduce a new subscription package for users who want to use MHS more 'litely'. Enter MHS Lite! We learned that not everyone required their information to sync between the MHS website and handheld devices. Not everyone was necessarily interested in keeping lengthy details, so we narrowed down the main areas of MHS [...]
My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.
My Health Story founder, Soula Mantalvanos, has offered some helpful tips since beginning her advocacy in 2011 and launching pudendalnerve.com.au. We've collated some of Soula's most popular blogs on easing the pressure when sitting and travelling and included her most recent discovery about the effects of inflammation, which is proving to be a critical factor in helping with the management of any chronic health issue.
Is Symptom Tracking Your Road Map to Better Days? If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. Imagine if you can let go of nagging details by being confident your symptoms are well-documented, in a safe place and being used as your road map to better days. This is possible!
There are many motivational accounts on social media, but one of My Health Story’s (MHS) faves is The New Happy. And that’s because of its brightness and colourful and uplifting graphics and messages. And it’s free. The New Happy also provides small bite-size doses, which are more manageable for people with chronic illnesses who might experience brain fog and other symptoms that make absorbing information tricky. In addition to limiting the communications received on a day-to-day basis (actually, [...]
My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia
Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?
As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]
In this 15-minute Vimeo, founder of My Health Story, Soula Mantalvanos, discusses how she believes visualising the personal health experience can lead to better care and understanding. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. […]
(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]
