Soula Presents at the RACGP Chronic Disease Workshop

2023-11-18T11:09:02+11:00November 18, 2023|Advocacy, Blog, Education, Health Management|

My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.

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Soula’s Greatest Tips for Chronic Health Management

2023-09-26T12:39:45+10:00September 26, 2023|Blog, Health Management|

My Health Story founder, Soula Mantalvanos, has offered some helpful tips since beginning her advocacy in 2011 and launching pudendalnerve.com.au. We've collated some of Soula's most popular blogs on easing the pressure when sitting and travelling and included her most recent discovery about the effects of inflammation, which is proving to be a critical factor in helping with the management of any chronic health issue.

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Is Symptom Tracking Your Road Map to Better Days?

2023-09-18T11:41:54+10:00September 18, 2023|Blog, Health Management, Using My Health Story|

Is Symptom Tracking Your Road Map to Better Days? If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. Imagine if you can let go of nagging details by being confident your symptoms are well-documented, in a safe place and being used as your road map to better days. This is possible!

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The New Happy

2023-08-07T13:18:04+10:00August 7, 2023|Blog, Health Management|

There are many motivational accounts on social media, but one of My Health Story’s (MHS) faves is The New Happy. And that’s because of its brightness and colourful and uplifting graphics and messages. And it’s free. The New Happy also provides small bite-size doses, which are more manageable for people with chronic illnesses who might experience brain fog and other symptoms that make absorbing information tricky.  In addition to limiting the communications received on a day-to-day basis (actually, [...]

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My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia

2023-06-30T15:01:53+10:00June 30, 2023|Blog, Friends of MHS, Health Management|

My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia

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Own Your Health Data

2023-03-30T14:34:37+11:00March 30, 2023|Blog, Health Management, Using My Health Story|

Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?

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Jaspen, Your Ally in Chronic Pain

2023-04-26T15:09:42+10:00February 2, 2023|Affiliate, Blog, Health Management|

As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]

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Visualising Health with My Health Story Founder, Soula Mantalvanos

2022-10-09T12:54:01+11:00October 9, 2022|Blog, Education, Health Management, Using My Health Story|

In this 15-minute Vimeo, founder of My Health Story, Soula Mantalvanos, discusses how she believes visualising the personal health experience can lead to better care and understanding. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. […]

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MHS New Feature: Print My Health Story

2022-10-04T11:30:45+11:00September 24, 2022|Blog, Health Management, Using My Health Story|

(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]

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Bronwyn Thompson, PhD, MSc (Psych): Making the First Contact

2022-06-12T11:00:21+10:00October 18, 2021|Blog, Health Management, Research|

There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!

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My Health Story Logo
MHS is a patient-driven project aided by an advisory group of Healthcare Practitioners and consumers.
Stop repeating yourself and juggling health apps. With My Health Story, you can enjoy full sharing control and streamline your information to tailor your care.

Take control of your health – put yourself at the centre of your care with My Health Story.

Quicklinks

Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)

Main Menu

— Home
— Blog
— Sign up

— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Videos

— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact

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