Advocacy Archives - My Health Story

Soula Presents at the RACGP Chronic Disease Workshop
Gallery
Soula Presents at the RACGP Chronic Disease Workshop

Advocacy, Blog, Education, Health Management

Soula Presents at the RACGP Chronic Disease Workshop

Great Oz2023-11-18T11:09:02+11:00November 18, 2023|Advocacy, Blog, Education, Health Management|

My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.

The Hurting Strings – An Artist’s Story of Pain
Gallery
The Hurting Strings – An Artist’s Story of Pain

Advocacy, Blog, Media

The Hurting Strings – An Artist’s Story of Pain

Great Oz2023-09-18T12:36:25+10:00September 18, 2023|Advocacy, Blog, Media|

The Hurting Strings, an award-winning documentary was created by Australian filmmaker Peter Lamont in 2014 and has had thousands of views resonating with so many people living with invisible illness. It is a little sad that the film still has so much meaning, in fact, it's still relevant so many years later. I truly wish it wasn't.

Let’s Be Brave Together
Gallery
Let’s Be Brave Together

Advocacy, Blog

Let’s Be Brave Together

Great Oz2023-07-20T15:19:05+10:00July 20, 2023|Advocacy, Blog|

A few months ago and just appointed as CEO of Painaustralia, I was chatting to Giulia, who was making time to connect with people living with pain; our next step would be an interview for some media. Instead, I received an awful message. Giulia is a tough cookie, watch our chat and feel that fire in her! And she’ll be using that fire to put this awful experience to great use – raising funds for So Brave and Painaustralia as she shaves her hair on 31 July. I want us all to get behind her.

Soula’s Recent Chat with Painaustralia’s new CEO, Giulia Jones
Gallery
Soula’s Recent Chat with Painaustralia’s new CEO, Giulia Jones

Advocacy, Blog, Media

Soula’s Recent Chat with Painaustralia’s new CEO, Giulia Jones

Great Oz2023-07-30T14:46:00+10:00April 11, 2023|Advocacy, Blog, Media|

Recently, Soula Mantalvanos had the opportunity to speak with Giulia Jones, the new CEO of Painaustralia. Giulia and Soula had a lengthy conversation covering the frustrations of living with chronic pain – the main issues being its invisible nature, access to treatments, and its impact on communities across Australia (worldwide, actually). Despite the seriousness of their discussion, they still managed to share a few laughs – Giulia is easy to speak with and wonderfully straightforward!

Soula Presents her Lived Experience at the CODA Conference 2022
Gallery
Soula Presents her Lived Experience at the CODA Conference 2022

Advocacy, Blog, Education

Soula Presents her Lived Experience at the CODA Conference 2022

Great Oz2022-09-24T12:08:46+10:00September 24, 2022|Advocacy, Blog, Education|

(Vimeo: Soula's lived experience forms part of Dr Paul Grinzi's Management of Persistent Pain in Primary Care workshop at the Australian CODA Conference 2022). My Health Story (MHS) founder Soula Mantalvanos was invited to contribute her lived experience to the Management of Persistent Pain in Primary Care workshop created by General Practitioner & Medical Educator Dr Paul Grinzi. The four-day (IRL) CODA conference was held at the Melbourne Convention Centre, and healthcare practitioners and clinicians working in various health sectors attended from the US, NZ and Australia. Participants worked together as Dr Grinzi presented educational resources such as science-based evidence, videos, and examples to clarify the understanding of chronic pain through the four-hour workshop. Everyone shared their experiences, knowledge and ideas.

Title