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As health tech creeps up in the medical industry, it's becoming clearer healthcare's direction is changing and PainTrain MHS are thrilled that people are finally being placed in the driver's seat. Patients: have you thought about trying to enhance your voice at appointments? Have you wanted to tell your story your way and elaborate on the version your General Practitioner writes in the referral letter? Do you feel unheard during ongoing appointments and that no one truly understands your situation? Practitioners: have you been left feeling you wanted to do more for your patients or that you could help them more if you were able [...]
Pain Management Network: Communicating & building your healthcare team
Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.
Soula’s Pain Management Video Resources
A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life.
Song II by Michael Leunig Special Edition for Pain Revolution
Each year, Pain Revolution and a team of passionate and dedicated cyclists hit the road in order to host free community-based pain education to both health professionals and the general public. This year they’ll be riding from Geelong through Queenscliff and straight past Soula and Theo’s gallery, Queenscliff Gallery & Workshop (QG&W), to regional Victoria. Raising funds To help with the fundraiser this year, Soula turned to kindred spirits – artists are pretty empathic creatures. The first who came to mind was Michael Leunig, his work and thoughts fitting for the chronic pain subject. Of course, Michael Leunig said, ‘Yes’… so too did Theo! And [...]
PainTrain, Pain Revolution & Michael Leunig Unite For the Rural Outreach Tour
One thing to be sure of when it comes to pain is its ability to unite people – people that may have never met otherwise. Soula’s fundraising efforts have always included Pain Revolution. In addition to believing that Pain Revolution’s approach to sharing contemporary pain science and building capacity is crucial in how we approach pain care, Pain Revolution also believes in Soula. We all need to stick together. Together, we unite our missions, connections and resources in the hope of making a greater impact. So Soula and Pain Revolution’s Trevor Barker had an idea this year to invite Michael Leunig, Australian cartoonist, poet and [...]
Neos Kosmos Chronic Pain: the Treacherous Disease that Steals the Lives of Thousands
(Excerpt from Neos Kosmos feature story by MAΡΙΑ ΚΑΜΠΥΛH 25 September 2019) Πρόκειται για μια ψηφιακή πλατφόρμα καταγραφής του ατομικού ιστορικού των πασχόντων από χρόνιο πόνο έτσι ώστε να μην χρειάζεται κάθε φορά που επισκέπτονται τους διάφορους ειδικούς να επαναλαμβάνουν τις ίδιες πληροφορίες ξανά και ξανά κάτι που είναι τρομερά ψυχοφθόρο για τους ίδιους, όπως μας διαβεβαιώνει η Σούλα εξηγώντας μας πώς ξεκίνησε η ιδέα του Pain train. It is a digital recording platform for chronic pain sufferers' personal history so that the person does not have to repeat the same information. It is traumatic, Soula assures us this is where the idea of PainTrain began. [...]
