My Health Story founder, Soula Mantalvanos, has offered some helpful tips since beginning her advocacy in 2011 and launching pudendalnerve.com.au. We've collated some of Soula's most popular blogs on easing the pressure when sitting and travelling and included her most recent discovery about the effects of inflammation, which is proving to be a critical factor in helping with the management of any chronic health issue.
My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia
Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?
(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]
(Story from MHS Founder's blog pudendalnerve.com.au) I'm a proud buttercup. Despite my many ongoing limitations, I feel I've come a long way. And today, I have a huge milestone to celebrate with you. But first, shall I reflect? The earliest evidence of being able to again participate in life was the posting of my first Instagram. It was July 2011, a few months before I began this website. I remember Instagram forming a lifeline to my creativity when my phone and a glass of water were too heavy for me. After Instagram, more abilities began to very slowly unravel. I began to sit a little longer, think broader, and make a little more. I started building ideas a little grander and executing them. Over the past 15 years, I have watched myself rise above the injury that changed my body in 2007. I have made a book and a short documentary, became an advocate, contributed to a medical journal and helped with medical GP training. And now the triumphs...
My Health Story founder, contributes to a paper about self-management and self-care with regard to managing complex injuries and workers' compensation claims. What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis Authored by Michelle Manning Hutson, Sarah M Hosking , Soula Mantalvanos, Michael Berk, Julie Pasco, Trisha Dunning
My Health Story presents a way for individuals to communicate their experiences and manage their healthcare better. For healthcare practitioners, it presents an opportunity to diversify your care offering and influence positive behaviour to the overall patient journey. My Health Story takes a holistic view of each unique lived experience and understands that patients are more than their disease. Home — Reference the handy links — Reset your password — Edit your Health Story names and descriptions [...]
The PainTrain My Health Summary team is thrilled to announce they will be rebranding to My Health Story. Keep reading because there are more announcements about the new website as well as a subscription offer of a lifetime... The consumer survey distributed to PainTrain MHS Advisory members, subscribers, and followers formed a clear decision to rename the health summarising resource to My Health Story. At close second was My Health History. In addition, the survey results indicated the much-needed requirement for an App version of the resource and more functionality for Affiliates and subscribers seeking more straightforward ways to access and include health information from their GPs. The development work has begun behind the scenes, and a new website is forming – we'll keep you up to date! BUT we also need a little support if we're going to make it to the blaring request for a My Health Story App. We've got an offer of a lifetime. Keep reading! (Can't wait to hear our offer of a lifetime? Bursting to support us? Then hit it!)
Opinion Leader Empowered Patients About the Era of Digital Health: a Qualitative Study Patient-centred medicine Authors: Bertalan Meskó, Nóra Radó, Zsuzsa Győrffy ‘The relationship e-patients have with their physicians is based on efficient communication, proactivity, the desire for asking questions and the use of technologies. The interviews have shown that the rapid development of technology has fundamentally changed the lives of these e-patients, and technology eventually is transforming the physician–patient relationship into a [...]
Information and Communications Technology–Based Interventions Targeting Patient Empowerment: Framework Development Authors: Liran Karni, Koustuv Dalal, Mevludin Memedi, Dipak Kalra, Gunnar Oskar Klein ‘The concept of patient empowerment is closely associated with the ongoing paradigm shift from a paternalistic to a patient-centered model of engagement. In recent decades, health care systems have undergone a major paradigm shift from a patient-doctor relationship towards a patient-health care relationship where patients, as consumers, are enjoying more equality in [...]
