The My Health Story 2022 Survey Outcome Report

2022-12-16T12:20:46+11:00December 16, 2022|Blog, Research|

The My Health Story (MHS) 2022 Survey Outcome Report was conducted through 2022. The user feedback information was collected from MHS current subscribers, viewers of patient health stories (carers, practitioners, clinicians, etc) and website visitors such as healthcare professionals who have a strong interest in patient empowerment, enhancing care for people living with chronic illness as well as new technologies relating to chronic health.  User feedback data was collected from responses to this MHS survey. The MHS 2022 Survey [...]

Founder of My Health Story, Authors JMIR Paper About Injured Workers

2022-06-11T15:47:39+10:00April 13, 2022|Blog, Research|

My Health Story founder, contributes to a paper about self-management and self-care with regard to managing complex injuries and workers' compensation claims. What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis Authored by Michelle Manning Hutson, Sarah M Hosking , Soula Mantalvanos, Michael Berk, Julie Pasco, Trisha Dunning

Reflections About Pain

2022-06-12T10:31:23+10:00January 16, 2022|Blog, Research|

The brain does not have to make a “decision” as to how we should perceive the sound.  But whether we interpret that loud sound as thunder, a car backfiring, a cannon firing, or as a bomb exploding is a matter of perception. We can always check and find out whether our interpretation is correct. Thus, we may be mistaken about the cause of activation of the auditory (“hearing”) apparatus but, to reiterate, we cannot be mistaken about the experience of having heard the sound. This sensation is “given” to us. The same can be said of pain. We are not mistaken when we experience pain. But we may come up with a number of different interpretations of the experience.

Joe Tatta asks Hayley Leake: What do patients value learning about pain?

2022-06-12T10:32:40+10:00January 16, 2022|Blog, Research|

There’s quite detailed information about neurotransmitters like neuroscience. That could be interesting for research, but it might not be that relevant for the patient. That was the impetus for asking this question, “How do we make something more interesting to the person who is receiving it by asking them, ‘What is it that you value?'”

A Novel Method for Digital Pain Assessment Using Abstract Animations: Human-Centered Design Approach

2022-06-12T10:33:38+10:00January 9, 2022|Blog, Research|

A Novel Method for Digital Pain Assessment Using Abstract Animations: Human-Centered Design Approach published on 7.1.2022 in Vol 9, No 1 (2022): Jan-Mar. Authors of this article: Nema Rao, Sophy Perdomo, Charles Jonassaint ‘Successful medical care depends on effective communication between patients and clinicians regarding the patients’ health symptoms and the most appropriate therapeutic path [35]. Providers are unable to deliver quality medical care when they lack the tools to appropriately assess or interpret patient symptoms that are critical [...]

Opinion Leader Empowered Patients About the Era of Digital Health: a Qualitative Study

2022-01-09T12:02:08+11:00January 8, 2022|Blog, Research|

Opinion Leader Empowered Patients About the Era of Digital Health: a Qualitative Study Patient-centred medicine Authors: Bertalan Meskó, Nóra Radó, Zsuzsa Győrffy ‘The relationship e-patients have with their physicians is based on efficient communication, proactivity, the desire for asking questions and the use of technologies. The interviews have shown that the rapid development of technology has fundamentally changed the lives of these e-patients, and technology eventually is transforming the physician–patient relationship into a [...]

Information and Communications Technology–Based Interventions Targeting Patient Empowerment: Framework Development

2022-06-12T10:35:30+10:00January 7, 2022|Blog, Research|

Information and Communications Technology–Based Interventions Targeting Patient Empowerment: Framework Development Authors: Liran Karni, Koustuv Dalal, Mevludin Memedi, Dipak Kalra, Gunnar Oskar Klein ‘The concept of patient empowerment is closely associated with the ongoing paradigm shift from a paternalistic to a patient-centered model of engagement. In recent decades, health care systems have undergone a major paradigm shift from a patient-doctor relationship towards a patient-health care relationship where patients, as consumers, are enjoying more equality in [...]

Team PainTrain MHS Raise Over $1,200 for Research

2022-06-12T11:01:02+10:00November 2, 2021|Blog, Research|

Thank you From all of us at Team PainTrain MHS we thank you for helping us raise more than our set target of $1,000. Chronic pain research in rural areas will receive a total contribution of $1,236 from Team PainTrain MHS towards an overall total of $76,186. Mandy Mercuri, Deb Thompson, Soula & Theo Mantalvanos walked 281kms – well beyond their anticipated goal and we loved every minute of it. Money you raise as part of Pain Revolution's [...]

Bronwyn Thompson, PhD, MSc (Psych): Making the First Contact

2022-06-12T11:00:21+10:00October 18, 2021|Blog, Health Management, Research|

There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!

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