Blog2024-11-14T16:23:04+11:00

Information and Communications Technology–Based Interventions Targeting Patient Empowerment: Framework Development

January 7, 2022|Categories: Blog, Research|Tags: , , , , |

Information and Communications Technology–Based Interventions Targeting Patient Empowerment: Framework Development Authors: Liran Karni, Koustuv Dalal, Mevludin Memedi, Dipak Kalra, Gunnar Oskar Klein ‘The concept of patient empowerment is closely associated with the ongoing paradigm shift from a paternalistic to a patient-centered model of engagement. In recent decades, health care systems have undergone a major paradigm shift from a patient-doctor relationship towards a patient-health care relationship where patients, as consumers, are enjoying more equality in the provision of, and access to, their own health care [9,10]. Decision makers, including the World Health Organization, have long considered patient empowerment as a priority, based on the anticipation that [...]

2021 Done, Dusted… and Destined

December 19, 2021|Categories: Blog, Using My Health Story|Tags: |

There's a lot not to like about 2021, but the team at PainTrain MHS are focused on progress, growth and living and learning. That means we look at the takeaways of experiences past to direct us on the way forward. There is much to look forward to – expectations of better healthcare are high. That's very much due to the recent announcement that Telehealth is here to stay. Of course, every person living with a chronic illness or disability could have asserted Telehealth's importance on healthcare – it should not have taken a pandemic to get us here. But we are here now, so [...]

Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

December 6, 2021|Categories: Blog, Media, Using My Health Story|Tags: , , , |

(Original post by Soula Mantalvanos for pudendalnerve.com.au) It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've now participated in a few of the Murray City Coast Country (MCCC) GP Training sessions with the fabulous Dr Paul Grinzi (boy, does he get it!). It's a positive experience for so many reasons. Firstly, the patient experience incorporated into GP training is great for obvious reasons as nothing beats learning from the lived experience. But I feel [...]

Talking HealthTech: Soula in the Hot Seat With Pete

November 13, 2021|Categories: Blog, Media|Tags: , , |

Soula joined pain organisations, forums and online groups and has told her story in the media and at conferences to help with pain management training and the establishment of great connections through her advocacy website pudendalnerve.com.au. But! Soula doesn't want to just keep repeating her story; our founder likes to inspire change! "I wanted to join a community that grasped creative communication, design and ideation relating to health. I wanted to be with conceptualists where ideas are produced and not measured (data, data, data… boring!)." In her attempts to implement PainTrain MHS formally into the healthcare industry, she found herself bumping into the Health Tech communities more and more. This is a world of movers and shakers, and one such community is Talking Healthtech (THT). THT was founded by Peter Birch. Peter worked in management roles in healthcare organisations for over 15 years; big ones and small ones, innovative startups and slow-moving beasts; he's seen all different kinds. Pete has experienced the exciting developments and the frustrating stagnation of all the ups and downs in health.

Team PainTrain MHS Raise Over $1,200 for Research

November 2, 2021|Categories: Blog, Research|Tags: , |

Thank you From all of us at Team PainTrain MHS we thank you for helping us raise more than our set target of $1,000. Chronic pain research in rural areas will receive a total contribution of $1,236 from Team PainTrain MHS towards an overall total of $76,186. Mandy Mercuri, Deb Thompson, Soula & Theo Mantalvanos walked 281kms – well beyond their anticipated goal and we loved every minute of it. Money you raise as part of Pain Revolution's Challenge goes to support people in pain, and their practitioners, in rural and regional Australia through the Pain Revolution initiatives. Once again, thank you all for your [...]

Bronwyn Thompson, PhD, MSc (Psych): Making the First Contact

October 18, 2021|Categories: Blog, Health Management, Research|Tags: |

There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!

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