Soula Presents at the RACGP Chronic Disease Workshop

2023-11-18T11:09:02+11:00November 18, 2023|Advocacy, Blog, Education, Health Management|

My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.

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Soula’s Greatest Tips for Chronic Health Management

2023-09-26T12:39:45+10:00September 26, 2023|Blog, Health Management|

My Health Story founder, Soula Mantalvanos, has offered some helpful tips since beginning her advocacy in 2011 and launching pudendalnerve.com.au. We've collated some of Soula's most popular blogs on easing the pressure when sitting and travelling and included her most recent discovery about the effects of inflammation, which is proving to be a critical factor in helping with the management of any chronic health issue.

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Soula Mantalvanos on The Health Design Podcast

2023-08-07T13:17:49+10:00August 7, 2023|Blog, Media|

The Journal of Health Design Australia presents The Health Design Podcast (THDP) with Moyez Jiwa, who recently invited My Health Story's (MHS) founder, Soula Mantalvanos, to chat. THDP aims to feature interviews with the world's leading health design experts, including clinicians, designers, patients, authors and researchers. Their motto: Better health by design. In the podcast, Soula discusses her health experience, the problems that inspired her to build a health summarising resource, and why she believes it can help individuals receive the tailored care they need.  Listen up!

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My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia

2023-06-30T15:01:53+10:00June 30, 2023|Blog, Friends of MHS, Health Management|

My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia

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Introducing My Health Story friend, Wise Psychology

2023-04-29T10:44:05+10:00April 24, 2023|Affiliate, Blog, Using My Health Story|

Seeking mental health support when living with an invisible illness is essential to the care and well-being process. Finding high-quality and accessible mental health support tailored to your needs can be difficult. Wise Psychology, My Health Story’s (MHS) latest friend, could be your answer to this problem! Chronic illness has a substantial psychological and emotional component, including stress, anxiety, guilt, grief, shame, and depression. People living with invisible chronic conditions can be left feeling their illness is ‘all [...]

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Own Your Health Data

2023-03-30T14:34:37+11:00March 30, 2023|Blog, Health Management, Using My Health Story|

Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?

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Jaspen, Your Ally in Chronic Pain

2023-04-26T15:09:42+10:00February 2, 2023|Affiliate, Blog, Health Management|

As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]

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MHS New Feature: Print My Health Story

2022-10-04T11:30:45+11:00September 24, 2022|Blog, Health Management, Using My Health Story|

(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]

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My Health Story Now Live in Your App Store

2022-06-13T13:32:11+10:00June 13, 2022|Blog, Using My Health Story|

(Story from MHS Founder's blog pudendalnerve.com.au) I'm a proud buttercup. Despite my many ongoing limitations, I feel I've come a long way. And today, I have a huge milestone to celebrate with you. But first, shall I reflect? The earliest evidence of being able to again participate in life was the posting of my first Instagram. It was July 2011, a few months before I began this website. I remember Instagram forming a lifeline to my creativity when my phone and a glass of water were too heavy for me.  After Instagram, more abilities began to very slowly unravel. I began to sit a little longer, think broader, and make a little more. I started building ideas a little grander and executing them.  Over the past 15 years, I have watched myself rise above the injury that changed my body in 2007. I have made a book and a short documentary, became an advocate, contributed to a medical journal and helped with medical GP training. And now the triumphs...

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Copyright 2012 - 2024 | Website by ooi | Hosted on WP-Engine | My Health Story gives you control of your personal health information. Own your health data, track and share your health story. Manage your health records in one place for $49 per year |
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