Soula Presents at the RACGP Chronic Disease Workshop

2023-11-18T11:09:02+11:00November 18, 2023|Advocacy, Blog, Education, Health Management|

My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.

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The Hurting Strings – An Artist’s Story of Pain

2023-09-18T12:36:25+10:00September 18, 2023|Advocacy, Blog, Media|

The Hurting Strings, an award-winning documentary was created by Australian filmmaker Peter Lamont in 2014 and has had thousands of views resonating with so many people living with invisible illness. It is a little sad that the film still has so much meaning, in fact, it's still relevant so many years later. I truly wish it wasn't. 

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Soula Mantalvanos on The Health Design Podcast

2023-08-07T13:17:49+10:00August 7, 2023|Blog, Media|

The Journal of Health Design Australia presents The Health Design Podcast (THDP) with Moyez Jiwa, who recently invited My Health Story's (MHS) founder, Soula Mantalvanos, to chat. THDP aims to feature interviews with the world's leading health design experts, including clinicians, designers, patients, authors and researchers. Their motto: Better health by design. In the podcast, Soula discusses her health experience, the problems that inspired her to build a health summarising resource, and why she believes it can help individuals receive the tailored care they need.  Listen up!

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Let’s Be Brave Together

2023-07-20T15:19:05+10:00July 20, 2023|Advocacy, Blog|

A few months ago and just appointed as CEO of Painaustralia, I was chatting to Giulia, who was making time to connect with people living with pain; our next step would be an interview for some media. Instead, I received an awful message.  Giulia is a tough cookie, watch our chat and feel that fire in her! And she’ll be using that fire to put this awful experience to great use – raising funds for So Brave and Painaustralia as she shaves her hair on 31 July. I want us all to get behind her.

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Soula’s Recent Chat with Painaustralia’s new CEO, Giulia Jones

2023-07-30T14:46:00+10:00April 11, 2023|Advocacy, Blog, Media|

Recently, Soula Mantalvanos had the opportunity to speak with Giulia Jones, the new CEO of Painaustralia. Giulia and Soula had a lengthy conversation covering the frustrations of living with chronic pain – the main issues being its invisible nature, access to treatments, and its impact on communities across Australia (worldwide, actually). Despite the seriousness of their discussion, they still managed to share a few laughs – Giulia is easy to speak with and wonderfully straightforward!

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Women in Business Times News Group Feature

2023-03-05T11:39:38+11:00March 3, 2023|Media, Media Releases|

As featured in Women in Business, International Women’s Day edition of the Bellarine Times. Soula Mantalvanos is an entrepreneur who has dedicated herself to making a difference for people living with chronic illness. This mission stems from her experience after an injury in 2007. Despite visiting multiple health professionals, Soula was misdiagnosed for 4.5 years and left with chronic pain. This personal experience inspired her to create a solution for others facing similar challenges. With her company, OOI [...]

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My Health Story Now Live in Your App Store

2022-06-13T13:32:11+10:00June 13, 2022|Blog, Using My Health Story|

(Story from MHS Founder's blog pudendalnerve.com.au) I'm a proud buttercup. Despite my many ongoing limitations, I feel I've come a long way. And today, I have a huge milestone to celebrate with you. But first, shall I reflect? The earliest evidence of being able to again participate in life was the posting of my first Instagram. It was July 2011, a few months before I began this website. I remember Instagram forming a lifeline to my creativity when my phone and a glass of water were too heavy for me.  After Instagram, more abilities began to very slowly unravel. I began to sit a little longer, think broader, and make a little more. I started building ideas a little grander and executing them.  Over the past 15 years, I have watched myself rise above the injury that changed my body in 2007. I have made a book and a short documentary, became an advocate, contributed to a medical journal and helped with medical GP training. And now the triumphs...

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Australian Government Boosting Female Founders Mentor Wrap-Up

2022-06-13T14:24:03+10:00May 13, 2022|Achievements, Blog|

(Image: Lee Ussher with Theo & Soula Mantalvanos, the final Australian Government Boosting Female Founders mentoring session) Founder Soula Mantalvanos has wrapped up her Boosting Female Founders mentoring grant sessions with Lee Ussher of Buzz Web Media. It has been timely for Soula’s award of this Australian Government grant with telehealth behaviour changes finally being implemented in the healthcare industry post-pandemic. Soula realised how much more support her original project, PainTrain My Health Summary, could offer people living [...]

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Founder of My Health Story, Authors JMIR Paper About Injured Workers

2022-06-11T15:47:39+10:00April 13, 2022|Blog, Research|

My Health Story founder, contributes to a paper about self-management and self-care with regard to managing complex injuries and workers' compensation claims. What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis Authored by Michelle Manning Hutson, Sarah M Hosking , Soula Mantalvanos, Michael Berk, Julie Pasco, Trisha Dunning

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Presenting My Pain Management Story and Vision at the Murray City Coast Country GP Training

2022-06-12T10:40:01+10:00December 6, 2021|Blog, Media, Using My Health Story|

(Original post by Soula Mantalvanos for pudendalnerve.com.au) It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've now participated in a few of the Murray City Coast Country (MCCC) GP Training sessions with the fabulous Dr Paul Grinzi (boy, does he get it!). It's a positive experience for [...]

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