Pain Summary2023-06-01T12:27:52+10:00

THIS HEALTH STORY IS ABOUT:

The MHS Founder Story (in Brief)

2021 Pelvic Pain

2019 Pelvic Pain

Spinal Stimulation Implant

Spinal Cord Stimulation Trial

Prep For Spinal Stimulation Trial

Pain Experience In 2018

Main Health Experience

PROFILE

YOU ARE VIEWING THE HEALTH STORY OF:

Mrs Soula Mantalvanos
Date of birth: 11/17/1969
Address: Yellow Brick Road
Phone: 0352584927
  • Female
  • Chronically
  • Allergies
  • Asthma
  • Chronic pain
https://myhealthstory.com.au/pain-characteristic?tab=public_cv

BODY MAP

BODY AREA / FEELING

  • Key

  • Electric
  • Scratchy
  • Pins/needles
  • Dull/ache
  • Burning
  • My words

CHARACTERISTICS

How the issue impacts throughout the day
MORNING
DAYTIME
EVENING
SLEEPING
PATTERN
The type of experience throughout the day:
  • Burning
  • Spasming
  • Electric
Words that describe the health experience:
  • ‘It’s All in Your Head’
  • Aching
  • Broken
  • Burning
  • Sensory
  • Spasm
Medical terms used to describe treatment and the health experience:
  • Acupuncture
  • Allodynia
  • Chronic
  • Fatigue
  • Flare
  • Hyperacusis
  • Mindfulness
  • Nerve block
  • Nerve Pain
  • Neuralgia
  • Neuromodulation
  • Neuropathic
  • Neuroplasticity
  • Pacing
  • Pain Management
  • Pain Specialist
  • Pelvic
  • Physiotherapy
  • Psychological
  • Pudendal Neuralgia

DAILY LIVING

QUESTION / ANSWER
OFTEN
A LITTLE
HARDLY
N/A
The issue stops me from
The painful facts are
Due to the issue
Physically, I feel
Emotionally, I feel
Support I have
What exacerbates the issue
What eases the issue

LIFE

GOALS
WITHIN WEEKS
WITHIN MONTHS
WITHIN A YEAR
ACHIEVED
WEEKS
MONTHS
A YEAR
DONE
I WOULD LIKE TO:

Professional, personal life and important medical history

PROFESSIONAL LIFE
PERSONAL LIFE
MEDICAL HISTORY
PRE EXISTING MEDICAL CONDITIONS

THE ISSUE

SUMMARY OF THE HEALTH ISSUE
HOW THE ISSUE BEGAN
DESCRIBE THE ISSUE IN BRIEF
NOTE DIAGNOSTIC INFORMATION
NOTE ANY HEALTH COVER / INSURANCE
OTHER SIGNIFICANT EXPERIENCES / LIFE EVENTS

MANAGEMENT

MEDICATION (SUPPLEMENTS AND/OR HERBS)
PAST TREATMENT (CURRENT TREATMENT IN NEXT SECTION)
OTHER IMPORTANT DETAILS WORTH NOTING

CURRENT SNAPSHOT

Current management activity
Date
Notes
2021-01-26
Remedial massage monthly
2021-01-26
Herbs (capsule form)
2021-01-26
Spinal cord stimulation new program for legs – excellent
2021-06-30
COVID lockdowns proving beneficial for pacing
2021-09-29
First appointment with Dr Valerio Vittone. Am investigating diet/health through genetics. DNA testing as well AI bloods.
2022-10-17
Self managing well - COVID helped enormously. Anti-inflam changes have made a great difference. Trying to just soldier on for now...

FILING CABINET

PERSONAL HEALTH FILES UPLOADED BY: Soula

2016 Sacral Implantation (showing peripheral stim)

Sacral Stimulation implant

Spinal Stimulation implant

A celebration worth uploading

PERSONAL SPACE


DIARISED NOTES
Date
Notes
2020-07-08

2020

DEC
  • Had an appointment with Boston Scientific – I have stimulation for the feet! So far so wonderful!
  • Appointment was at Pain Matrix at Epworth which helped a great deal.
  • Anchor may be causing shooting pains but I can manage it
NOV
  • Hello CV-19! What a year!!
  • CV-19  life is perfect for me. No outings, no work, no pressure. I managed to exercise (light, short walk) 2x a day and on occasion could either plank for 1.3  mins or alternately do some yoga. BLISS
  • Would never want people to understand what living with chronic illness is like but CV-19 certainly provided a glimpse.
  • The value of working, the purpose that work gives was truly understood through this period. I feel like asking everyone if they now understand the lengths I've gone to in trying to work a little with this chronic health condition.
  • Spinal stim and I are getting on so well. Very different unit but works well. Helping with weight I think. Vibrations managed far better. Feet sore most of the time though.
  • I went bang last night. From 7:30 until this morning I slept and slept... horrific. Great timed massage this morning. Coming to life again.
2021-07-01

2021

Thanks for checking in! Jul
  • A couple of lockdowns – bliss for the pelvis really and for pacing up
  • Last two weeks I  managed yoga 2x a week
  • Have been consistently managing 2 short walks a day now
  • Still avoiding car but new car definitely made a great difference (less noise - much more insulated)
Dec
  • Ups and downs that come with pacing up but mostly very good
  • DNA and AI blood investigations are leading to some great mood changes and especially great pressure relief in the gut
  • Not so daunted by the thought of heading into Melb now and can enjoy my time there far more as I have feelings of confidence that all will be ok on my return. I could not think this way before the new supplements/diet changes.
  • Major concerns trying to avoid catching COVID...
2022-10-17

2022

COVID

It was so positive in the end. The change of life style and easing social pressure was excellent. I exercised more.

Investigating my DNA and now switching to an anti-inflammatory diet and also adding in Dr Valerio's supplements has got me 'up another notch'. 

Considering I'm meant to be menopausal this is all incredibly positive. So I'm setting new goals like adding steps to my walking, a 1 x fortnight trip to Melbourne and back on the same day and if all goes well, I want to try and manage a short drive now that we have an automatic car. My GP is just 1km away.
2023-09-22

2023

Anti inflammatory diet and everything I learnt from Dr Valerio Vittone that I'm implementing is going so well.

My pain levels are lower, and I seem to manage the occasional car ride much better, and I can manage some steps in the morning during my walk.

Onwards, upwards.

THE JOURNEY

   

Mar'2007

Fitball burst

Sep'2007

Pain Management

May'2009

OP thickened rectovaginal septum removed

Oct'2009

Insurance Misdiagnosis

Nov'2009

Sacral Stim Implant

Feb'2011

Peripheral Stim implant

May'2011

Diagnosis

Nov'2011

Nerve Block 3

Dec'2011

Bilateral cortisone shot and nerve block to pudendal nerve

Apr'2012

Nerve Block

Feb'2013

Chinese Medicine

Jul'2015

New Life Begins

Nov'2015

Sacral Stim implant

Jan'2019

Spinal Cord Stim

Jan'2022

DNA results

Jan'2022

Anti-inflam diet

Apr'2022

COVID-19

Jan'2023

Relief for bowel spasm/inflammation

STATUS CHART

  • Key:
  • MOOD
  • MEDICATION
  • EXERCISE
  • STRESS

Hover over mood map to view any further medication, exercise and stress information

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2022-04-30

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BODY MAP

BODY AREA / FEELING

  • Key

  • Electric
  • Scratchy
  • Pins/needles
  • Dull/ache
  • Burning
  • My words

CHARACTERISTICS

How the issue impacts throughout the day
MORNING
DAYTIME
EVENING
SLEEPING
PATTERN

DAILY LIVING

LIFE

GOALS
WITHIN WEEKS
WITHIN MONTHS
WITHIN A YEAR
ACHIEVED
WEEKS
MONTHS
A YEAR
DONE
I WOULD LIKE TO:

Professional, personal life and important medical history

PROFESSIONAL LIFE
PERSONAL LIFE
MEDICAL HISTORY
PRE EXISTING MEDICAL CONDITIONS

THE ISSUE

SUMMARY OF THE HEALTH ISSUE
HOW THE ISSUE BEGAN
DESCRIBE THE ISSUE IN BRIEF
NOTE DIAGNOSTIC INFORMATION
NOTE ANY HEALTH COVER / INSURANCE
OTHER SIGNIFICANT EXPERIENCES / LIFE EVENTS

MANAGEMENT

MEDICATION (SUPPLEMENTS AND/OR HERBS)
PAST TREATMENT (CURRENT TREATMENT IN NEXT SECTION)
OTHER IMPORTANT DETAILS WORTH NOTING

CURRENT SNAPSHOT

FILING CABINET

PERSONAL HEALTH FILES UPLOADED BY: Soula

Spinal stim implant

Spinal cord IPG

Bandages off

Bandages off 2

Bandages off 3

Wound 1

Wound 2

Wound 3

PERSONAL SPACE


DIARISED NOTES
Date
Notes
2019-02-24

For Nick

March Not a great week, perhaps my two walks a day are too much. They are very short. All trial and error. Feb Going well. Bandages off, images in health summary. Just one pesky stitch where the sacral leads were removed. Bandage still on as it looked a little open.

For Boston Scientific

Programs Burst 400 & 1000 not providing enough leg/foot relief. Only managed the Burst 400 until Saturday (since Monday when programmed) and had to change to Tonic

THE JOURNEY

   

Jan'2019

Spinal cord stim implant

Dec'2020

Reprogramming

STATUS CHART

  • Key:
  • MOOD
  • MEDICATION
  • EXERCISE
  • STRESS

Hover over mood map to view any further medication, exercise and stress information

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2022-04-30

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BODY MAP

BODY AREA / FEELING

  • Key

  • Electric
  • Scratchy
  • Pins/needles
  • Dull/ache
  • Burning
  • My words

CHARACTERISTICS

How the issue impacts throughout the day
MORNING
DAYTIME
EVENING
SLEEPING
PATTERN
The type of experience throughout the day:
Words that describe the health experience:
Medical terms used to describe treatment and the health experience:

DAILY LIVING

QUESTION / ANSWER
OFTEN
A LITTLE
HARDLY
N/A
The issue stops me from
The painful facts are
Due to the issue
Physically, I feel
Emotionally, I feel
Support I have
What exacerbates the issue
What eases the issue

LIFE

GOALS
WITHIN WEEKS
WITHIN MONTHS
WITHIN A YEAR
ACHIEVED
WEEKS
MONTHS
A YEAR
DONE
I WOULD LIKE TO:

Professional, personal life and important medical history

PROFESSIONAL LIFE
PERSONAL LIFE
MEDICAL HISTORY
PRE EXISTING MEDICAL CONDITIONS

THE ISSUE

SUMMARY OF THE HEALTH ISSUE
HOW THE ISSUE BEGAN
DESCRIBE THE ISSUE IN BRIEF
NOTE DIAGNOSTIC INFORMATION
NOTE ANY HEALTH COVER / INSURANCE
OTHER SIGNIFICANT EXPERIENCES / LIFE EVENTS

MANAGEMENT

MEDICATION (SUPPLEMENTS AND/OR HERBS)
PAST TREATMENT (CURRENT TREATMENT IN NEXT SECTION)
OTHER IMPORTANT DETAILS WORTH NOTING

CURRENT SNAPSHOT

Current management activity
Date
Notes
2021-01-26
Herbs (capsule form)
2021-01-26
Spinal cord stimulation new program for legs – excellent
2021-07-02
Doing well. Nothing like lockdown to help my pace up – huge difference! I've done yoga twice a week the last 2 weeks. It's been amazing.
2021-09-29
First appointment with Dr Valerio Vittone. Am investigating diet/health through genetics. DNA testing as well AI bloods.
2023-09-16
h1h2babc

FILING CABINET

PERSONAL HEALTH FILES UPLOADED BY: Soula

Stim x-ray

Stim IDs

Professor Teddy implant procedure report

Anne Florence report to GP - Kathy Yu

Anne Florence Plante report: "I make the following report in response to a request from Soula Mantalvanos regarding her medical expenses in relation to her workplace injury (March 2007)."

Professor Michael Quinn removal of pelvic ligament and septum report

Raffaele Vavala, Chinese Medical Practitioner report

Bone density 2015

Vicpain questionnaire

Practitioner list upto Nov 2011 (gave in updating this file!!)

Trial sacral stim lead placement

Pelvis x-ray showing both implants

Pelvis x-ray showing both implants (position at end of trial)

Nov 19 Sacral stim implantation

I'm adding this in as treatment. WorkCover exposed!

Sacral stim implant (and view of peripheral stim)

This makes me happy

XRay 2018

Spinal cord implant

Pain Revolution fundraiser – part of pain management!

Bloods

Herbs Ingredients

Herbs label

DNA results

AI Bloods

vaccination certificate

medicare card

License

Pelvic CT

Cholesterol and Vit D bloods

Internation vaccination certificate

Bone density referral

2024 Vit D

2024 General Bloods

2024 Xray Lumbar & Thorasic spine

PERSONAL SPACE


DIARISED NOTES
Date
Notes
2017-07-05

2017

Dec 2
  • Feeling great - PEA is great!
  • Sensory issues settling
  • Was in the sun and even walked into the beach on a very hot day and managed it without fatigue! Just needed to rest in the evening and only experienced a little discomfort
Oct 24
  • Tinnitus becoming an issue - during the day and worse at night trying to sleep
  • PEA was tricky the first two weeks. Began to feel really down, disoriented, few hallucinations even but seem to be adjusting now and there is pain relief!
  • Drinking green tea and miso
  • Pushing for more yoga even if it's only sun salutations
  • New burse is a great program. Spaced me out at first, weird but adjusted. Feel less pressure in my head
Oct 11
  • Appointment was great as usual
  • PEA script and I need to ask about a cooling gel/cream for rectal area
  • Focus on diet anti inflam diet
  • check lungs (make app Dr Reid and get Ventolin)
  • Awareness for panic/mindfulness

  • Acoustic Shock Disorder | Hyperacusis

  • New burs program added to stim
Oct 5 Notes for app on Tuesday with Nick
  • IPG giving me a few pains - not sure if this is due to weight loss (less padding!!)
  • sensory issues with the sound of my hair, sticky tape dispenser and taring of paper when Theo is wrapping artwork a few meters away. Head moving on the pillow at night can be awkward as well.
  • Still no daily routine established. It seems no routine is my best routine and I exercise in whatever way is suitable on the day. This could be 2 sun salutes, a 1km slow walk, a light 20 min yoga for pelvic pain routine, the hula hoop or walking on the spot for a few minutes - whatever I can get.
  • Good heart rate lifter is plank pose but of course can't always do it.
  • Evenings are proving difficult. With my increased activity and attempt to work, I fatigue so normally I'd have little creative activities to do, a little drawing, or whatever. I'm finding I'm too tired but laying on the couch is painful - always has been. So Theo has to rub my feet, I put up with the pain, and/or I sit on the toilet alot... most comfy spot.
  • Inflamation in fingers is becoming more often. Just coming out of a 5 week period where I couldn't get my rings on and I've lost that kilo so very swollen and the joints are sore at night. Hips seem to be cranky too... perhaps the left side more.
  • If I sit too long, my lower back and IPG area swell quite a bit.
  • Overall though, much improved pain levels, have definitely paced up but limitations such as being in the car, shopping, lifting over the 3-5kg and the freedom to plan regular outings still rule the day.
July: A great week I have been experimenting with my own brain further. I've had time! There's a spot I always felt was 'tight' above and behind my eye (on the right) and sometimes it even felt itchy but of course I couldn't get to it. Recently I've been really focusing on it and trying to relax it, let it go. When I do that it drops my forehead and my eyelid and the tension releases all the way down the back of my neck and top of shoulders. Most interestingly, it stops the pain. Patient theory (madness): If shock is my injury and I was in the sitting position on the ball staring at my screen in this tighter brain state (I was working), then the pop of the ball was registered through my ear firstly and then the system felt the bang (as well as the backside). So could my trigger be the position in which the brain was in at the time of the pop - by that I mean the eye and brain focus and that tightness in the area? I know it's mad but my eye and brain are in that position all the time and now, being able to 'release' that tension, am I changing things? Furthermore, does this explain my great response to the anaesthetic and to sleep?
2018-07-04

2018

Apr – Dec Sacral stim problems... I need a new one! Sacral stim out, spinal cord stim in by January 2019. Mar
  • Planning GPAAD and although a huge pressure I know it'll be good for me
  • Back on full dose of PEA (still taking my herbs)
  • Won my reimbursement for implants fight with w/cover - wrote to the Minister
  • Had one period - feeling fine re menopause
  • Walking regularly but still not in routine - listening to the bod
  • Seeing my great nephew once per 2 months
  • Plans in for a home behind QG&W
  • Finances slowly sorting (had huge help from father in law)
Jan
  • Easing back the PEA to see what difference it makes.
  • Hot weather is terrible and always impacts. My feet feel like they'll blow up.
  • No periods but feel fine in that regard
  • Focused on walking more and not worried if it happens out of routine - taking what I can get and when I can get it
  • Survived the festive season by being even stricter with socialising
  • Missing my great nephew
  • Missing out on my niece's 30th
2019-07-03

2019

Dec
  • Still feeling my way around new stim – it's really different
  • Herb change has proven tricky, back to original Blood Moving formula
  • Additional issues, sore arm and tooth needing root canal adding stress. Ombudsman released latest WorkCover report – highly stressful!
  • Christmas adding most stress
  • Managing but super flat. Riding it out. Trying to continue walking and where possible, a little plank and yoga
Jun
  • Getting to know my new spinal stim and the new capacity as well as the new limits.
  • So far it's proving positive and it's nice to be passed the post-op phase. I'm keeping the more specific details in the 2019 health summary.
1970-01-01

2020

DEC
  • Had an appointment with Boston Scientific – I have stimulation for the feet! So far so wonderful!
  • Appointment was at Pain Matrix at Epworth which helped a great deal.
  • Anchor may be causing shooting pains but I can manage it
NOV
  • Hello CV-19! What a year!!
  • CV-19  life is perfect for me. No outings, no work, no pressure. I managed to exercise (light, short walk) 2x a day and on occasion could either plank for 1.3  mins or alternately do some yoga. BLISS
  • Would never want people to understand what living with chronic illness is like but CV-19 certainly provided a glimpse.
  • The value of working, the purpose that work gives was truly understood through this period. I feel like asking everyone if they now understand the lengths I've gone to in trying to work a little with this chronic health condition.
  • Spinal stim and I are getting on so well. Very different unit but works well. Helping with weight I think. Vibrations managed far better. Feet sore most of the time though.
  • I went bang last night. From 7:30 until this morning I slept and slept... horrific. Great timed massage this morning. Coming to life again.
2021-09-08
Mum had another stroke. Pain levels are UP!
2021-12-22

2021

Oct
  • Opening up. Terrified at the thought of having more long-term issues if I get COVID. Lockdown has been great – walking going well but not as well as complete lockdown (regional area has been open).
Jul
  • A couple of lockdowns – bliss for the pelvis really and for pacing up
  • Last two weeks I  managed yoga 2x a week
  • Have been consistently managing 2 short walks a day now
  • Still avoiding car but new car definitely made a great difference (less noise - much more insulated)
Dec
  • Ups and downs that come with pacing up but mostly very good
  • DNA and AI blood investigations are leading to some great mood changes and especially great pressure relief in the gut
  • Not so daunted by the thought of heading into Melb now and can enjoy my time there far more as I have feelings of confidence that all will be ok on my return. I could not think this way before the new supplements/diet changes.
  • Major concerns trying to avoid catching COVID...
2023-04-24

2023

April

Cholesterol (alarming at 7.4 from 6.9) 
  • Good cholesterol is up (04/2023 = 2.9 | 10/ 2022 = 2.8)
  • Non-HDL is up (04/2023 = 4.5 | 10.2022 = 4.1)
Notes:
  • Planning more fish, apples & Psyllium husk.
  • Will have toast for more fibre.
  • Ask about probiotic.
  • Ask about coffee.
Changes:
  • Stopped vinegar in the morning
  • Definitely more stressed with Theo's scenario and Mum's homecare management
  • But exercised more, lessened alcohol, hardly any dairy had lots of hot cross buns in lead up to test with butter

Sep

Followed up my cholesterol and it's come right down, back to 6.9. apparently with my good cholesterol levels and my family history, this is a good and normal reading for me. 

Will keep up the diet changes.

THE JOURNEY

   

Mar'2007

Fitball Bursts

Apr'2007

Rectal Surgeon

Apr'2007

Physiotherapy

Jun'2007

Chiropractor

Aug'2007

Acupuncture

Aug'2007

Opinion

Sep'2007

Acupuncture

Sep'2007

Pain Management

Sep'2007

Pain Management

Sep'2007

Meditation

Oct'2007

Hydrotherapy

Oct'2007

W/cover OccPhys

Jan'2008

Feldenkrais

Feb'2008

Remedial Massage

May'2008

Pain Management

Mar'2009

Psychology

May'2009

OP thickened rectovaginal septum removed

Jun'2009

Physiotherapy/ultrasound

Jul'2009

Psychiatrist (w/cover)

Aug'2009

Neurosurgeon (Income Protection)

Oct'2009

Med Panel

Mar'2010

Pain Management Assess

Aug'2010

Acupuncture

Sep'2010

Orth Surg

Jan'2011

Peripheral Stimulation implant (trial)

Feb'2011

Peripheral stimulation device

Feb'2011

Peripheral Stimulation implant (permanent)

May'2011

Diagnosis

Nov'2011

Alexander Technique (ongoing)

Dec'2011

Nerve block/treatment

Apr'2012

Nerve block/treatment

Nov'2012

Nerve block/treatment

Feb'2013

Acupuncture

May'2015

Bone density

Jun'2015

Endocronologist

Jul'2015

New life

Jul'2015

Seeking new treatment

Sep'2015

Sacral Stim Trial

Nov'2015

Sacral stim implant

May'2016

Post op appointment

Oct'2017

Pain Management

Apr'2018

Remedial Massage

Jun'2018

Remedial Massage

Dec'2018

Spinal Cord Stim trial

Jan'2019

Spinal cord stim implant

Aug'2020

Breast Screen

Aug'2020

Rectal surgeon

Nov'2020

Remedial Massage

Dec'2020

Stim reprogram

Jan'2022

DNA results

Apr'2022

COVID-19

Jan'2023

Rectal spasm

STATUS CHART

  • Key:
  • MOOD
  • MEDICATION
  • EXERCISE
  • STRESS

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