Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.
A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life.
Chronic pain resources A summary of online and accessible initiatives and resources Purpose of this resource This resource aims to improve awareness among Primary Health Networks (PHNs) of current online and accessible chronic pain initiatives and resources relevant to primary care in Australia. The information in this resource may be used by PHNs: • To inform the implementation of chronic pain initiatives • To distribute among their networks of primary care providers and consumers PainTrain is listed [...]
Um, actually, they aren't in competition. They are two very different online resources.
(By Soula on pudendalnerve.com.au, My Recent Follow up Appointment) I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis. To prevent you all from zoning out (and my backside from having a fit), how about I spread my pain management report out a little? If you’re in a kind of ‘I can’t be bothered, I’m over it’ and ‘don’t want to hear any recommendations or my brain will burst’ state then [...]
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Videos
— MHS Friends
— FAQ
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Videos
— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
Copyright 2012 – 2026 | Website by ooi | Hosted on HIPAA VAULT | My Health Story gives you control of your personal health information. Own, track and share your health story. Manage your health story in one place from $29 – $49 per year | Privacy & T’s & C’s
