Is Symptom Tracking Your Road Map to Better Days? If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. Imagine if you can let go of nagging details by being confident your symptoms are well-documented, in a safe place and being used as your road map to better days. This is possible!
There are many motivational accounts on social media, but one of My Health Story’s (MHS) faves is The New Happy. And that’s because of its brightness and colourful and uplifting graphics and messages. And it’s free. The New Happy also provides small bite-size doses, which are more manageable for people with chronic illnesses who might experience brain fog and other symptoms that make absorbing information tricky. In addition to limiting the communications received on a day-to-day basis (actually, [...]
My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia
Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless appointments required; now, we also have to be considerate of healthcare systems under pressure. Guess who gets the short end of the stick? We pay with our lives. Perhaps healthcare systems were destined to burst their stitches because healthCARE was never built to care for people; it was made to keep people relying on it. That's not care. Can taking more ownership of our health make a difference?
As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]
In this 15-minute Vimeo, founder of My Health Story, Soula Mantalvanos, discusses how she believes visualising the personal health experience can lead to better care and understanding. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. […]
(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]
There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!
Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.
A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life.
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Videos
— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Videos
— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
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