Jaspen, Your Ally in Chronic Pain

2023-04-26T15:09:42+10:00February 2, 2023|Affiliate, Blog, Health Management|

As My Health Story (MHS) knows, one of the biggest challenges for people living with chronic pain is receiving validation. Finding a diagnosis and, once that occurs, being taken seriously and provided adequate support. MHS is happy to introduce an additional partner within the chronic disease world, Jaspen. Jaspen believe that data can attract the right medical team and access the appropriate care. And data communicated from the hands of its owner can empower people to feel in [...]

Visualising Health with My Health Story Founder, Soula Mantalvanos

2022-10-09T12:54:01+11:00October 9, 2022|Blog, Education, Health Management, Using My Health Story|

In this 15-minute Vimeo, founder of My Health Story, Soula Mantalvanos, discusses how she believes visualising the personal health experience can lead to better care and understanding. Soula combines her years of living with chronic pain and her professional creative communication experience to advocate for a better quality of care. […]

MHS New Feature: Print My Health Story

2022-10-04T11:30:45+11:00September 24, 2022|Blog, Health Management, Using My Health Story|

(IMAGE: Judy Darling prints her health story via the website) An exciting new feature is helping MHS users communicate their unique health situations more easily during appointments. My Health Story (MHS) has always prioritised the safe sharing of user health stories. The current MHS Access Link function effectively tracks information for users who like to monitor whose checking in to their health story/stories, and when and how often. Over the past few months, some user feedback sent to [...]

Bronwyn Thompson, PhD, MSc (Psych): Making the First Contact

2022-06-12T11:00:21+10:00October 18, 2021|Blog, Health Management, Research|

There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!

Pain Management Network: Communicating & building your healthcare team

2022-06-12T10:58:54+10:00August 1, 2021|Blog, Health Management|

Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.

Soula’s Pain Management Video Resources

2022-06-12T11:04:00+10:00March 27, 2021|Blog, Health Management|

A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life. 

The Australian Prevention Partnership Centre

2021-04-08T12:18:59+10:00March 8, 2019|Blog, Health Management|

Chronic pain resources A summary of online and accessible initiatives and resources Purpose of this resource This resource aims to improve awareness among Primary Health Networks (PHNs) of current online and accessible chronic pain initiatives and resources relevant to primary care in Australia. The information in this resource may be used by PHNs: • To inform the implementation of chronic pain initiatives • To distribute among their networks of primary care providers and consumers PainTrain is listed [...]

Repost from Soula: I Turned a Corner

2019-08-04T14:50:15+10:00May 30, 2018|Blog, Health Management|

(Original post on Soula’s blog pudendalnerve.com.au, I Turned a Corner) Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We’re also learning to manage the sacrifices. It makes me feel I’ve turned a corner. Home, then A couple of weeks ago, I actually did turn a corner. After staying in Melbourne for a special family lunch, during the evening we also managed to catch [...]

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