The Australian Prevention Partnership Centre
Chronic pain resources A summary of online and accessible initiatives and resources Purpose of this resource This resource aims to improve awareness among Primary Health Networks (PHNs) of current online and accessible chronic pain initiatives and resources relevant to primary care in Australia. The information in this resource may be used by PHNs: • To inform the implementation of chronic pain initiatives • To distribute among their networks of primary care providers and consumers PainTrain is listed under 'Other' resources in Table 3: Initiatives and resources to support quality improvement and provide health system support View the full resource Chronic Pain Resources [...]
How Soula Uses PainTrain Through A New Treatment Trial
Resorting to PainTrain through her spinal cord stimulation trial, Soula wanted to predominately keep her history together and to also document the information once, storing it in a safe place.
My Health Record vs PainTrain – My Health Summary
Um, actually, they aren't in competition. They are two very different online resources.
Soula Presenting at GPADD18 – Dealing with Addiction Conference
In the upcoming GPADD18 conference, Soula will draw on her communication skills as well as her 11 year patient experience and talk about chronic pain’s perception, and also present her pain management resources. Using her personal chronic pain experience and her creative skills as an artist and graphic designer, Soula created pudendalnerve.com.au where she documents her experience and collates her findings about the condition. Soula has come to realise that the key to living with ― and overcoming ― chronic pain is accepting it and taking responsibility for its management. She also found that having to retell and update her story to a range of [...]
User Experience (UX) Research
User Experience is a hot topic right now in the digital health world and so the PainTrain team are hot onto it. Thank you to Irith Williams who leads PainTrain through this process and also to Lissanthea Taylor for introducing us to her incredibly resourceful friend! Who better than to begin the UX process than our founder, Soula, who initially had to map out her patient journey (pictured above) before delving into a very cathartic process with sticky notes. […]
Putting People in Pain in the Driver’s Seat
(From the Pain Revolution website) Soula Mantalvanos and Pain Train join the Pain Revolution Community action and learning together is a key part of the Pain Revolution message. We need to include all people in the conversation if we’re going to make the changes needed to reduce the burden of persisting pain. We have some wonderful people in our community that have stories to tell. They don’t ride bikes but that doesn’t keep them on the sidelines. One of those people is Soula Mantalvanos, who has given us permission to borrow some of her energy and passion as a Pain Revolution ambassador. Hearing about the [...]
