The Hurting Strings, an award-winning documentary was created by Australian filmmaker Peter Lamont in 2014 and has had thousands of views resonating with so many people living with invisible illness. It is a little sad that the film still has so much meaning, in fact, it's still relevant so many years later. I truly wish it wasn't.
Is Symptom Tracking Your Road Map to Better Days? If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. Imagine if you can let go of nagging details by being confident your symptoms are well-documented, in a safe place and being used as your road map to better days. This is possible!
The Journal of Health Design Australia presents The Health Design Podcast (THDP) with Moyez Jiwa, who recently invited My Health Story's (MHS) founder, Soula Mantalvanos, to chat. THDP aims to feature interviews with the world's leading health design experts, including clinicians, designers, patients, authors and researchers. Their motto: Better health by design. In the podcast, Soula discusses her health experience, the problems that inspired her to build a health summarising resource, and why she believes it can help individuals receive the tailored care they need. Listen up!
There are many motivational accounts on social media, but one of My Health Story’s (MHS) faves is The New Happy. And that’s because of its brightness and colourful and uplifting graphics and messages. And it’s free. The New Happy also provides small bite-size doses, which are more manageable for people with chronic illnesses who might experience brain fog and other symptoms that make absorbing information tricky. In addition to limiting the communications received on a day-to-day basis (actually, [...]
We love the saying, ‘It takes a village’. And although it relates to raising children, the belief that an entire community must provide for and interact positively to manage something important and achieve greatness resonates perfectly with the Friends of My Health Story (MHS). With this positive statement, we welcome Painaustralia as our newest MHS Friend. Living with a chronic illness can make it challenging to access the right healthcare team and resources. Even harder is addressing the [...]
A few months ago and just appointed as CEO of Painaustralia, I was chatting to Giulia, who was making time to connect with people living with pain; our next step would be an interview for some media. Instead, I received an awful message. Giulia is a tough cookie, watch our chat and feel that fire in her! And she’ll be using that fire to put this awful experience to great use – raising funds for So Brave and Painaustralia as she shaves her hair on 31 July. I want us all to get behind her.
My Health Story Welcomes More Good Days – More Empowerment for Individuals living with Fibromyalgia
The Digital Health Festival (DHF) was mega. Australia’s largest digital health transformation event brought together the entire health eco-system (hospitals, primary & allied care, aged care, pharmacy, research and policy). My Health Story (MHS) Founder Soula Mantalvanos and codirector Theo Mantalvanos enjoyed every minute of connecting, learning, aligning, and plugging MHS to a digital-health-famished audience. Their standout sentiment aligned with each attendee’s shared mission to improve the quality of care. MHS was in the best place to boast [...]
The Digital Health Festival is Australia’s largest digital health transformation event. The Digital Health Festival brings together Australia’s entire health eco-system, including hospitals, primary & allied care, aged care, pharmacy, research and policy. As an aspiring new health tech innovator, My Health Story is keen to mingle with healthcare professionals, organisations, services and groups specifically interested in tailoring care for people with complex health issues. MHS has made many friends and connections online over the past two years, [...]
Seeking mental health support when living with an invisible illness is essential to the care and well-being process. Finding high-quality and accessible mental health support tailored to your needs can be difficult. Wise Psychology, My Health Story’s (MHS) latest friend, could be your answer to this problem! Chronic illness has a substantial psychological and emotional component, including stress, anxiety, guilt, grief, shame, and depression. People living with invisible chronic conditions can be left feeling their illness is ‘all [...]
