lived experience Archives - My Health Story

Access The Live Recording of our Melbourne Design Week Q&A
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Access The Live Recording of our Melbourne Design Week Q&A

Blog, Health Management, Media, Using My Health Story

Access The Live Recording of our Melbourne Design Week Q&A

MyHealthStory2026-05-26T16:04:46+10:00May 26, 2026|Blog, Health Management, Media, Using My Health Story|

You might find our Melbourne Design Week Q&A event well worth listening to if you’ve never wondered about the benefits of having your health information at your fingertips, or if you didn’t know that (in most countries) your GP owns your medical record, not you! Listen up, take action and drive a system change that puts you at the centre of your healthcare. WATCH the professionally facilitated Q&A event for Melbourne Design Week about [...]

Mandy Mercuri: An Introduction to Pain Reprocessing Therapy and Somatic Tracking
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Mandy Mercuri: An Introduction to Pain Reprocessing Therapy and Somatic Tracking

Blog, Friends of MHS, Health Management

Mandy Mercuri: An Introduction to Pain Reprocessing Therapy and Somatic Tracking

MyHealthStory2025-11-28T14:13:07+11:00November 28, 2025|Blog, Friends of MHS, Health Management|

Guest blog by Mandy Mercuri Mindfulness & Pain Recovery Coach & My Health Story Advisory Member If you’re living with ongoing musculoskeletal pain, it’s completely understandable to feel frustrated, confused, or even hopeless at times. Many of us spend years being told to “manage” pain rather than understanding the root cause of why it’s happening or how to help it change. The good news? Pain can change. And today, I’d love to introduce [...]

Soula Presents at the RACGP Chronic Disease Workshop
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Soula Presents at the RACGP Chronic Disease Workshop

Advocacy, Blog, Education, Health Management

Soula Presents at the RACGP Chronic Disease Workshop

MyHealthStory2023-11-18T11:09:02+11:00November 18, 2023|Advocacy, Blog, Education, Health Management|

My Health Story founder, Soula Mantalvanos, was recently invited to share her valuable expertise for GP training, once again highlighting the significance of lived experience for chronic pain management education. The Royal Australian College of General Practitioners (RACGP) GP training session, ‘An approach to non-cancer pain,’ was hosted by Dr Paul Grinzi on Wednesday, 15 November 2023, in Melbourne. Soula’s 20-minute presentation included details of her 4.5-year medical odyssey that led to her chronic illness – one she believes could have been completely avoided with educational training sessions such as the one she was presenting at. Soula began her presentation by stating the vision and mission that have driven her advocacy and to becoming the founder of pudendalnerve.com.au and My Health Story: Understanding the unique lived experience is critical to tailored care and relieving the global burden of disease.

The Hurting Strings – An Artist’s Story of Pain
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The Hurting Strings – An Artist’s Story of Pain

Advocacy, Blog, Media

The Hurting Strings – An Artist’s Story of Pain

MyHealthStory2025-07-09T10:32:05+10:00September 18, 2023|Advocacy, Blog, Media|

The Hurting Strings, an award-winning documentary was created by Australian filmmaker Peter Lamont in 2014 and has had thousands of views resonating with so many people living with invisible illness. It is a little sad that the film still has so much meaning, in fact, it's still relevant so many years later. I truly wish it wasn't.

Digital Storytelling for Health-Related Outcomes in Older Adults: Systematic Review

MyHealthStory2022-06-12T10:25:28+10:00January 16, 2022|Blog, Research|

Digital storytelling is an emerging tool for sharing and recording lived experiences and may have the potential to support well-being but is yet to be systematically reviewed for use among older adults.

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