(Original post on Soula’s blog pudendalnerve.com.au, I Turned a Corner) Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We’re also learning to manage the sacrifices. It makes me feel I’ve turned a corner. Home, then A couple of weeks ago, I actually did turn a corner. After staying in Melbourne for a special family lunch, during the evening we also managed to catch [...]
We're thrilled to announce that with the donations of some special few people, PainTrain raised $824.64 of their $1,000 goal! Pain Revolution's goal was $80,000 and together with PainTrain, 33 other fundraisers raised $76,925 of that goal! For full details about the Ride for Pain visit the Pain Revolution website To get us to our goal (it's not too late!), please visit the Everyday Hero campaign.
User Experience is a hot topic right now in the digital health world and so the PainTrain team are hot onto it. Thank you to Irith Williams who leads PainTrain through this process and also to Lissanthea Taylor for introducing us to her incredibly resourceful friend! Who better than to begin the UX process than our founder, Soula, who initially had to map out her patient journey (pictured above) before delving into a very cathartic process with sticky [...]
(From the Pain Revolution website) Soula Mantalvanos and Pain Train join the Pain Revolution Community action and learning together is a key part of the Pain Revolution message. We need to include all people in the conversation if we’re going to make the changes needed to reduce the burden of persisting pain. We have some wonderful people in our community that have stories to tell. They don’t ride bikes but that doesn’t keep them on the sidelines. One [...]
Current edition of VICDOC available via the AMA Victoria website Time-saving tool for managing chronic pain Written by Kate James ‘While one in five Australians experience chronic pain (and one in three over 65 years), the National Pain Strategy indicates that many health professionals have limited training in pain management. There is a shortage of pain clinics, public waiting lists are on average two years’ long, and it’s often left to GPs to manage complex conditions in short [...]
Pain Train: Ambassador for the Pain Revolution 2018 (Soula Mantalvanos Jan 19, 2018 pudendalnerve.com.au) (Cut to the chase, I want to support the Pain Revolution 2018!!!) I’ve got a soft spot for Professor Lorimer Moseley. In Feb 2011 I had just had the peripheral stimulation implant op and was slowly emerging from my darkest days. Alone at home while Theo started a new full time job and staring at our shut down graphic design business I was [...]
Pain Train – think of it as a patient CV Judging by my own measures (hope you don’t mind me taking a stab here), whether you’re a professional or a patient you wouldn’t be thinking that it’s up to you to invite this new Pain Train language into your relationship. Would I be right? You all know my Pain Train scenario – I instigated the use of it in my own pain management and Dr Christelis agrees that it [...]
(By Soula on pudendalnerve.com.au, My Recent Follow up Appointment) I’ve had loads of information to process after my recent appointment with pain specialist, Dr Nick Christelis. To prevent you all from zoning out (and my backside from having a fit), how about I spread my pain management report out a little? If you’re in a kind of ‘I can’t be bothered, I’m over it’ and ‘don’t want to hear any recommendations or my brain will burst’ state then [...]
Body in Mind posted this excellent research from Marina Pinheiro and Gustavo Machado about the abundant health apps out there; What App is Good for My Back? Pulse+IT also recently posted their story, There’s a bad app for That. There are various purposes health apps are made. From where I’m standing, my app was never a promise to solve a health problem – that’s impossible. I’ve been asked many times why Pain Train isn’t available as an app. [...]
We couldn’t resist sharing this humorous but realistic animation about chronic pain. Professor Lorimer Moseley has played a key role in our founder’s pain management. But what we love most about this animation, is the simple way in which it communicates the monstrous chronic pain experience – we agree, it is a beast! […]
