Digital storytelling is an emerging tool for sharing and recording lived experiences and may have the potential to support well-being but is yet to be systematically reviewed for use among older adults.
The brain does not have to make a “decision” as to how we should perceive the sound. But whether we interpret that loud sound as thunder, a car backfiring, a cannon firing, or as a bomb exploding is a matter of perception. We can always check and find out whether our interpretation is correct. Thus, we may be mistaken about the cause of activation of the auditory (“hearing”) apparatus but, to reiterate, we cannot be mistaken about the experience of having heard the sound. This sensation is “given” to us. The same can be said of pain. We are not mistaken when we experience pain. But we may come up with a number of different interpretations of the experience.
There's a lot not to like about 2021, but the team at PainTrain MHS are focused on progress, growth and living and learning. That means we look at the takeaways of experiences past to direct us on the way forward. There is much to look forward to – expectations of better healthcare are high. That's very much due to the recent announcement that Telehealth is here to stay. Of course, every person living with a chronic illness [...]
(Original post by Soula Mantalvanos for pudendalnerve.com.au) It was wonderful sharing my story and vision at the Murray City Coast Country GP Training. AND especially presenting on a stage and in actual physical life to 50 general practitioners (GPs) who were keen to learn about chronic pain. I've now participated in a few of the Murray City Coast Country (MCCC) GP Training sessions with the fabulous Dr Paul Grinzi (boy, does he get it!). It's a positive experience for [...]
Soula joined pain organisations, forums and online groups and has told her story in the media and at conferences to help with pain management training and the establishment of great connections through her advocacy website pudendalnerve.com.au. But! Soula doesn't want to just keep repeating her story; our founder likes to inspire change! "I wanted to join a community that grasped creative communication, design and ideation relating to health. I wanted to be with conceptualists where ideas are produced and not measured (data, data, data… boring!)." In her attempts to implement PainTrain MHS formally into the healthcare industry, she found herself bumping into the Health Tech communities more and more. This is a world of movers and shakers, and one such community is Talking Healthtech (THT). THT was founded by Peter Birch. Peter worked in management roles in healthcare organisations for over 15 years; big ones and small ones, innovative startups and slow-moving beasts; he's seen all different kinds. Pete has experienced the exciting developments and the frustrating stagnation of all the ups and downs in health.
Thank you From all of us at Team PainTrain MHS we thank you for helping us raise more than our set target of $1,000. Chronic pain research in rural areas will receive a total contribution of $1,236 from Team PainTrain MHS towards an overall total of $76,186. Mandy Mercuri, Deb Thompson, Soula & Theo Mantalvanos walked 281kms – well beyond their anticipated goal and we loved every minute of it. Money you raise as part of Pain Revolution's [...]
There's so much to love about Bronwyn's work. As a resource that is so heavily focused on the identity and experience of the person living with chronic pain, PainTrain My Health Summary believe the approaches explained by Bronwyn is key to successfully helping people manage their complex journeys. A patient's introduction to a new practitioner is a stressful time and one that requires clear communication and empathy. A PainTrain health summary works as an exceptional aid to this scenario. Empowering patients by listening and grasping their experiences as well as accepting them without judgment should be step one in the management of chronic pain. Thank you Bronnie!
As health tech creeps up in the medical industry, it's becoming clearer healthcare's direction is changing and PainTrain MHS are thrilled that people are finally being placed in the driver's seat. Patients: have you thought about trying to enhance your voice at appointments? Have you wanted to tell your story your way and elaborate on the version your General Practitioner writes in the referral letter? Do you feel unheard during ongoing appointments and that no one truly understands [...]
Living with a chronic condition means that you will have a different role with your healthcare providers than you would have if you had a short-term illness. Your role in managing your condition will be a more pro-active one where you will be involved in making decisions about many things that affect you, your healthcare management, your family, and your lifestyle.
A video library is forming on pudendalnerve.com.au! Soula's advocacy has transformed into video conversations with some of the people who have made a significant impact in her pain management and/or who have inspired Soula in some way. It's one thing for Soula to present her thoughts about these people but quite another to hear them explain their point of view. Soula presents chats with Theo Mantalvanos on being a 'carer', she reunites with her diagnosing physiotherapist Anne-Florence Plante (now working in Marsais, France) who shares her wealth of knowledge specifically on what pain is and the role of trauma. Deb Thompson – a creative kindred spirit who lives with pain gives her perspective of what it's like living with pain and communicating it. We also learn about the Alexander Technique from Maddy Lock who worked with Soula during one of Soula's toughest pain years, Amy Eicher talks about pain coaching and Soula presents a couple of videos about her daily life.
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Vimeos
— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
Take control of your health – put yourself at the centre of your care with My Health Story.
Quicklinks
Health stories
— MHS Founder (chronic pain)
— Judy Darling (aged care & stroke)
— Flora (Fibromyalgia)
Main Menu
— Key People
— Our Story
— Advocacy
— The Hurting Strings film
— About MHS
— MHS Vimeos
— MHS Friends
— Research
— Privacy & T’s & C’s
— Account Deletion
— Contact
